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Designing Personal Health Records for Cognitive Rehabilitation

Authors:
Klaudia Carcani
Miria Grisot
Harald Holone

Keywords: PHR; cognitive rehabilitation; coordination mechanisms; patients empowerment; CIS;

Abstract:
Personal Health Records (PHRs) are digital tools that give people the possibility to have access and control over their health data. They are usually used in situations when the patient is home or in casual encounters between the patient and the healthcare practitioner. Current related literature does not discuss much in terms of PHR usage in hospitals and possible implications for designing such PHRs. In this paper, we present the case of cognitive rehabilitation in a rehabilitation hospital. Patients in rehabilitation should take a leading role in their treatment as a prerequisite for more beneficial rehabilitation. We have analyzed the cognitive rehabilitation case and present a set of six design implications for designing a PHR for the patients in cognitive rehabilitation during their time at the hospital. We discuss these implications from a Computer Supported Cooperative Work (CSCW) perspective, where the PHR has been conceptualized as hybrid information spaces compounded by personal and Common Information Spaces (CIS). We found, that in cognitive rehabilitation, an important element for designing a PHR is its role not only in creating the possibility of sharing information between the patient and the healthcare practitioners, but, at the same time, offering some mechanisms for coordination between them as an incentive of recognizing patients work in the division of labor and helping the patient take more control over his/her rehabilitation.

Pages: 54 to 63

Copyright: Copyright (c) IARIA, 2020

Publication date: March 22, 2020

Published in: conference

ISSN: 2308-4138

ISBN: 978-1-61208-761-0

Location: Valencia, Spain

Dates: from November 21, 2020 to November 25, 2020