Home // International Journal On Advances in Intelligent Systems, volume 13, numbers 1 and 2, 2020 // View article

Guidelines for Participatory Design with People Living with Mild Acquired Cognitive Impairments

Authors:
Klaudia Çarçani
Harald Holone

Keywords: Participatory Design; Mild Acquired Cognitive Impairments; Guidelines

Abstract:
Mild Acquired Cognitive Impairment(s) (MACI) are called invisible impairments. This invisibility of symptoms makes that researchers often overlook people with MACI. This is the case in the field of Participatory Design (PD). In this paper, we investigate how to involve people with MACI in designing together digital solutions meant for them. Hence, how to involve people with MACI in Participatory Design. Considering the lack of literature in PD focused on MACI patients, we conducted a borderer investigation of the literature and derived a set of guidelines proposed by PD practitioners for involving people with cognitive impairments in PD. We have collected data on conducting PD with MACI patients from two empirical cases as part of two projects in a rehabilitation hospital in Norway, which offers specialized rehabilitation to people with MACI. We conducted 5 PD workshops with three different workshop outlines. Seventeen people with MACI participated. We present a detailed list of reflections-on-action for each workshop outline. We discuss the reflections with findings from the literature and conclude with a list of guidelines that researchers and designers should consider when involving people with MACI in conducting PD. The paper aims to attract the attention of PD practitioners to the MACI user group with the possibility of expanding the guidelines list in the future.

Pages: 59 to 84

Copyright: Copyright (c) to authors, 2020. Used with permission.

Publication date: June 30, 2020

Published in: journal

ISSN: 1942-2679