Evidence-Based Self-Management for Spondyloarthritis Patients

Leister, Wolfgang; Fongen, Camilla; Soldal, Dag Magnar; Hagen, Kåre Birger; Schulz, Trenton; Aursand, Peder; Chen, Liming; Franke, Carl-Henrik; Tjøstheim, Ingvar; Bai, Aleksander; Boye, Lars Thomas; Berre, Vebjørn; Østerås, Nina; Hagfors, Jon; Relbe-Moe, Jan Halvard; Dagfinrud, Hanne

Home // International Journal On Advances in Life Sciences, volume 9, numbers 3 and 4, 2017 // View article

Evidence-Based Self-Management for Spondyloarthritis Patients

Authors:
Wolfgang Leister
Camilla Fongen
Dag Magnar Soldal
Kåre Birger Hagen
Trenton Schulz
Peder Aursand
Liming Chen
Carl-Henrik Franke
Ingvar Tjøstheim
Aleksander Bai
Lars Thomas Boye
Vebjørn Berre
Nina Østerås
Jon Hagfors
Jan Halvard Relbe-Moe
Hanne Dagfinrud

Keywords: axial spondyloarthritis; self-management; health care; self-assessment; evidence-based; mobile applications; sensors; ethics.

Abstract:
We present a concept including a set of tools for self-management for patients suffering from axial spondyloarthritis (SpA). This concept involves patient-recorded outcome measures, both subjective assessment and clinical measurements, that are used to present recommendations. We report from experiences made while implementing a proof of this concept and analyse it from several perspectives. Our work resulted in proposing a self-management tool for the patient, improving the methodology for clinical measurements of rotation exercises, and proof the viability for using on-board sensors in smart phones. Further, since sensors collect data in a medical setting, we present ethical considerations.

Pages: 92 to 105

Publication date: December 31, 2017

Published in: journal

ISSN: 1942-2660