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Developing an Interactive Web Tool, the DecideGuide, to Facilitate Shared Decision Making in Dementia Care Networks: Lessons learned

Authors:
Marijke Span
Carolien Smits
Leontine Groen-van de Ven
Jan Jukema
Myrra Vernooij-Dassen
Jan Eefsting
Marike Hettinga

Keywords: dementia, decision-making, assistive technology, participatory design

Abstract:
An interactive web tool, the DecideGuide, is developed to support case managers in facilitating shared decision making in care networks of people with dementia. The DecideGuide is developed in collaboration with the end users: people with dementia, informal caregivers, and case managers. The development consisted of five sub studies. In retrospection, reflections are made on these sub studies. Lessons learned concerned: the importance and value of involving people with dementia in the development of assistive technology such as the DecideGuide, the importance of involving people with dementia from the start, the importance of taking time for people with dementia, and the importance of being aware about the role of end users from the very beginning. Moreover, developing an interactive tool for end users with different capacities and interests requires attuning to the most vulnerable end user group of people with dementia; just ask them rather than decide for them. This paper provides an overview of the lessons learned in the development of the DecideGuide.

Pages: 183 to 188

Copyright: Copyright (c) IARIA, 2015

Publication date: February 22, 2015

Published in: conference

ISSN: 2308-4359

ISBN: 978-1-61208-384-1

Location: Lisbon, Portugal

Dates: from February 22, 2015 to February 27, 2015