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Promoting Patient Voices on the Internet

Authors:
Marianne Vibeke Trondsen
Line Lundvoll Warth
Kari Dyb
Torsten Risør
Hege Kristin Andreassen

Keywords: ethics; patient narratives; qualitative methods; video recordings; Internet

Abstract:
Web-based promotion of qualitative research has a potential to reform traditional scientific dissemination, as well as it challenges ethical norms of research participation and anonymity. In this poster, we discuss ethical considerations of web-based dissemination of qualitative research on patient narratives through video recordings. Including subjective un-anonymized patient stories in research dissemination to inform and support, might have benefits for the field of science, patients, health professionals and the general population. However, ethical norms and guidelines for anonymity needs to be considered with care when promoting patient voices on the Internet.

Pages: 5 to 6

Copyright: Copyright (c) IARIA, 2016

Publication date: April 24, 2016

Published in: conference

ISSN: 2308-4359

ISBN: 978-1-61208-470-1

Location: Venice, Italy

Dates: from April 24, 2016 to April 28, 2016